Can we talk about it, please? I mean, really talk about it, candidly, honestly, respectfully. How possible is it to safeguard our adult/child's when we (parent/carer/siblings/guardian) are no longer? This is my current journey, 24 years in with my daughter Kathleen. Surely, I can't be the only parent having these thoughts.
Tag: Down Syndrome
Why am I still my adult daughter’s voice???
When your adult child has a learning disability, is running their social media controlling them?
Who decides who’s right and how? Why the Confusion, you may ask? ⬇️⬇️⬇️
A and B represent some viewpoints in thedisabled community.M represents the mainstream community. A: We are not disabled, we are differently-abled, we have a diff-ability.B: We are disabled, full stop! If you feel uncomfortable with that, it’s your problem, not ours. “Disabled” is not a dirty word!M: Errrrrrrrr….. A: Shame on you for supporting TV … Continue reading Who decides who’s right and how? Why the Confusion, you may ask? ⬇️⬇️⬇️
NOSP (Negative Outdated Stereotype Perception): is this how some of our children’s challenges are unwittingly and currently described?
Nobody wants their or their child's feature(s) or condition labelled negative or a thing of the past. They are current and very real for hundreds of families.
My mistake, my bad…
I had no idea… No idea it was possible to love someone so much, regardless… When I first started to advocate for people like my daughter, I made a very big mistake. By advocating mostly on how able they can be, I was amalgamating worthiness with ability and hence relegating all those in the Down … Continue reading My mistake, my bad…
DOWNism: When You’re not Even Good Enough for Your Own Community, or…The Dark Side of Positive Representation
We have all heard of #RACISM (prejudice, discrimination, or antagonism directed against someone of a different race based on the belief that one’s own race is superior) and #COLOURISM (prejudice, discrimination, or antagonism directed against individuals with a dark skin tone, typically among people of the same ethnic or racial group). But have you ever … Continue reading DOWNism: When You’re not Even Good Enough for Your Own Community, or…The Dark Side of Positive Representation
Nobody Told Me
what if she couldn't do any of these things? Then what? Would I be nostalgic of those road blocks, warnings and dead ends? I mean, really, then what?
Down Syndrome & Mother’s Day
If you ever wonder whether we love our children with DS the same or whether our children with DS love us the same, this is for you...
International Women’s Day: The Plight of Women with a Learning Disability
What’s harder to navigate when you’re a young woman w a LD? Being a woman? Having a LD? The fact that sexuality and LD are still a world apart, sadly?
Bits and Bobs about Down Syndrome
Bits and Bobs about Down syndrome...
I don’t want my life back!!
I can tell you with utter clarity that it's been a privilege to care for my daughter. She's been the life I never knew I needed.