I can tell you with utter clarity that it's been a privilege to care for my daughter. She's been the life I never knew I needed.
I can't help but feel extremely self-conscious that people will solely identify the source of that aggravation as her disability.
(I gave this presentation when Kathleen and I were invited by the Fundació Catalana Síndrome de Down to close their 17th International Conference on Down syndrome, in Barcelona, November 10th, 2017) How do you go about telling your adult child that the world doesn't want more people like him/her? That "It's OK to be different" … Continue reading Down Syndrome: What are we really afraid of?
I’m sorry I’m an eyesore to you because of the way I look. Can’t be helped I’m afraid. I think you look gorgeous, though. I’m sorry I’m an earache to you because of the way I speak. If you only knew how hard I try. There’s so much I want to tell you besides I … Continue reading SORRY?
she will have about 5mn to plead her case that people like her shouldn't have to explain and justify why they deserve to live.
September 26th, 2014 So, this is going to be a very emotional (for me), a very personal and most probably a very poorly articulated post. Incredibly it’s NOT going to be about Kathleen and Down syndrome (well, not primarily). And if you wonder why I would feel the need to make it public, well, 2 … Continue reading When the obvious is invisible…
("I DON'T HAVE TO") I happen to be a... ...WHITE (as far as I know. I'm not proud of it as I had no input in it, and frankly, I don't care. I'm not ashamed or feel accountable or responsible of what people with my skin colour did/are doing to peoples of different skin colours. … Continue reading I don’t give a toss which colour under the rainbow you are!