Can we talk about it, please? I mean, really talk about it, candidly, honestly, respectfully. How possible is it to safeguard our adult/child's when we (parent/carer/siblings/guardian) are no longer? This is my current journey, 24 years in with my daughter Kathleen. Surely, I can't be the only parent having these thoughts.
Author: troynize
All things DS, Autism, etc.... Was somehow a guest speaker at the United Nations, Geneva. Long-distance walker. French married to Brit. Lived in the USA, Scotland, Canada, Cyprus, Kuwait, Saudi Arabia, UAE, India and China. Currently in the UK.
Why am I still my adult daughter’s voice???
When your adult child has a learning disability, is running their social media controlling them?
Who decides who’s right and how? Why the Confusion, you may ask? ⬇️⬇️⬇️
A and B represent some viewpoints in thedisabled community.M represents the mainstream community. A: We are not disabled, we are differently-abled, we have a diff-ability.B: We are disabled, full stop! If you feel uncomfortable with that, it’s your problem, not ours. “Disabled” is not a dirty word!M: Errrrrrrrr….. A: Shame on you for supporting TV … Continue reading Who decides who’s right and how? Why the Confusion, you may ask? ⬇️⬇️⬇️
NOSP (Negative Outdated Stereotype Perception): is this how some of our children’s challenges are unwittingly and currently described?
Nobody wants their or their child's feature(s) or condition labelled negative or a thing of the past. They are current and very real for hundreds of families.
My mistake, my bad…
I had no idea… No idea it was possible to love someone so much, regardless… When I first started to advocate for people like my daughter, I made a very big mistake. By advocating mostly on how able they can be, I was amalgamating worthiness with ability and hence relegating all those in the Down … Continue reading My mistake, my bad…
New Year Re-Solutions…
As soon as Christmas is over, my daughter gets all excited about the next celebration that is New Year’s Eve. She loves partying, socialising, drinking champagne and dancing all night and I was wondering why she was all chirpy since she knew there wasn’t gonna be much about any of that this year, well, apart … Continue reading New Year Re-Solutions…
Actually, thank you Emmerdale…
I believe in healthy debates. I believe we can use Emmerdale's platform, not by shaming them but by using it to highlight everything that needs changing and missing (like an official pathway for women who do decide to carry on with their pregnancy) and addressing one by one all the concerns of expectant parents, and reassure them that those concerns although valid with their current understanding and knowledge of the condition will prove completely futile and unfounded, that in the end, it’s all about love and only love.
DOWNism: When You’re not Even Good Enough for Your Own Community, or…The Dark Side of Positive Representation
We have all heard of #RACISM (prejudice, discrimination, or antagonism directed against someone of a different race based on the belief that one’s own race is superior) and #COLOURISM (prejudice, discrimination, or antagonism directed against individuals with a dark skin tone, typically among people of the same ethnic or racial group). But have you ever … Continue reading DOWNism: When You’re not Even Good Enough for Your Own Community, or…The Dark Side of Positive Representation
In the end, aren’t we all drifting towards disability?
Too many people still feel uncomfortable around disability. But don't feel bad, sometimes even people with a disability feel that way amongst people with a disability different to theirs. We usually feel like we are walking on eggshells, worried about offending by what we might say or not say for that matter! The fear of … Continue reading In the end, aren’t we all drifting towards disability?
Nobody Told Me
what if she couldn't do any of these things? Then what? Would I be nostalgic of those road blocks, warnings and dead ends? I mean, really, then what?
I didn’t manage to self-isolate from my daughter with DS…
By day 3, she grabbed me from behind as I was snail-walking back into my bed and burst into tears. I followed suit and there was no going back. I would go in and out of sleep and wake up with her next to me massaging my feet or caressing my head…
Down Syndrome & Mother’s Day
If you ever wonder whether we love our children with DS the same or whether our children with DS love us the same, this is for you...
International Women’s Day: The Plight of Women with a Learning Disability
What’s harder to navigate when you’re a young woman w a LD? Being a woman? Having a LD? The fact that sexuality and LD are still a world apart, sadly?
Bits and Bobs about Down Syndrome
Bits and Bobs about Down syndrome...
From couch potato to 28km in just 4 months. How???
I cried before, during and after. I am just so darn proud of this young woman. Hearts should be made of Spandex because, really, mine has run out of space to store all the love I fell for her and my other 2. All she could say on the way back home in the car, and until she fell asleep, was: Can you believe it? I got my own medal!!
The bodies and faces we should launch 1,000 ships for and fall head over heels in love with!!
They’re done with clicking their heels in vain and shooting themselves in the foot by not standing tall with both feet on the ground!
Let’s have a little chat about “mongols” and R.E.T.A.R.D.S, shall we?
Let's have a little chat about mongols and the R-word, shall we?
Dear Gatekeepers of the Media/Fashion/Advertising Worlds…
From your side of the gate, we may appear as underdogs, even as dark horses at times, but what we are is your last epiphany. So please, unlock those gates and let us show you how wrong you’ve been until now and how FLAWSOME WE ARE!
Diverse Talent Agency???
Who is this agency that the fashion and media worlds never thought they would ever need?? After all, Zebedee Management only represent diverse talent. What does that even mean, anyway? I attended their second so-called catwalk show last night in Sheffield. Diversity they say. Well, let’s see: Age? From nought to fifties! Skin colour? You … Continue reading Diverse Talent Agency???
I don’t want my life back!!
I can tell you with utter clarity that it's been a privilege to care for my daughter. She's been the life I never knew I needed.
Surfing The Human Mind... 